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Helpful Tips

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How to talk to your kids about your diagnosis

Telling your children about your diagnosis is a difficult, but necessary task. We recommend the following when having this difficult conversation:

  • Honesty is the best policy. Kids, like adults, think the worst and the more they understand the less fear they will have.
  • Use age appropriate terms and language your child can understand.
  • Explain how things might change for them because of your diagnosis and encourage normal activities for them.
  • Encourage them to share their fears/tears/sadness and then help them to work through those feelings by providing hope and honest communication.
  • Recognize that not all children will have the same reaction, even within the same family. Most likely, each child will require different conversations and time devoted to the subject.

In addition to talking to your children, it is also important to discuss the situation with their caregivers and teachers in case there is a behavior change at school/daycare.

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